Rare Disease Innovations Institute
Durham, United States (US) · Health and Medical
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Last verified
May 2026
Rare Disease Innovations Institute is a Durham, North Carolina-based global non-profit dedicated to improving the lives of individuals affected by rare diseases.We serve the rare disease community by providing policy, tools, and data to accelerate diagnosis, enhance quality of life, and enable access to treatments.Our approach centers on creating a unique toolkit that empowers states to establish effective Rare Disease Advisory Councils (RDACs), fostering collaboration and driving impactful change.
Overview
We serve the rare disease community by providing policy, tools, and data to accelerate diagnosis, enhance quality of life, and enable access to treatments.
Our approach centers on creating a unique toolkit that empowers states to establish effective Rare Disease Advisory Councils (RDACs), fostering collaboration and driving impactful change. We are committed to building a future where rare diseases are rapidly understood and treated. RDII leverages data integration, prevalence studies, and network analysis to inform our work and support our mission.
Contact Details
Durham, United States (US)
Company Type
Nonprofit
Employees
10-20
Services
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